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DiGeorge Syndrome
We just recently adopted a little one diagnosed with DiGeorge Syndrome. From what the doctors are saying, and our research, he is only mildly affected. Is there anyone that has experience with this? we found a support group in our area, but any extra advice would be greatly appreciated!
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Digeorge is normally an issue with chromosome 22q11. There tend to be a LOT of medical complications such as heart, kidneys, and enlarged tonsils/adenoids. The latter can cause sleep apnea. Milestones are often delayed. Mild digeorge is good
. I have read a lot about people living normal lives with mild form of the syndrome. As years pass there is more and more info. Speech tends to be tough, I did a lot of sign with my son. Oh and potty training may take a while. My son is 5. He has a rare genetic disorder. When diagnosed they referred to his syndrome as digeorge because of the similarities. His deletion occurs on chromosome 10 p12 to 15. He is absolutely adorable and has an amazing personality. So sweet. I can tell he has so much he wants to say and wants me to understand, but his mouth won’t let him. He didn’t say mama until he was 3. 2 word combinations at 4. Hard for others to understand but I get it 
. He was signing by 20 months. More please. Thank you. Sorry. Milk. Play. Juice. He picks up quick. Obsessed with letters and numbers. He seemed slightly on the autism spectrum so I modified his diet. No dairy. The change was incredible, better eye contact, more focused, and more affectionate.
I hope this helps. It’s not easy by any means, and for a while it was hard watching other children (nieces nephews and friends children) be years younger and be speaking and potty trained. But he is the most loving and amazing little boy. He’s incredible. I don’t know if my rambling helps, but I wish you the best in this journey!
I think you are absolutely amazing for giving yourself and loving this child. Everyday my only wish is for Isaac to always have love!
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